Settings Focus Group and New Survey on Mental Health for People with Disabilities

HCBS Settings Focus Group Invitation

 On March 17, 2014 the Centers for Medicare and Medicaid Services (CMS) implemented new federal HCBS regulations that provided clarification concerning the required characteristics of service settings. The final rule establishes an outcome-oriented definition of HCBS settings that focuses on the nature and quality of individuals’ experiences. The rule reflects CMS’ intent to ensure individuals receiving services and supports through Medicaid HCBS programs have full access to the benefits of community living and receive services in the most integrated setting possible. Information on the final rule can be found at
In accordance with the regulations, Utah Medicaid created an HCBS Setting Transition Plan. All providers must be compliant with the Federal HCBS Settings Rule. As part of the plan, the State will assist providers through the compliance process. One way the State will be assisting is by hosting targeted focus group meetings. These meetings will facilitate stakeholder collaboration to identify creative ways to become compliant with the rule.
We invite you to participate in the following focus group meeting(s) that affect the service settings in which you have an interest. Please distribute this letter to other stakeholders who might also like to attend.

All Meetings will be held at the DOH Cannon Building from 2-4pm
288 North 1460 West, Salt Lake City UT 84114

June 5th: Room 129- Adult Day Care (non-residential)
June 19th: Room 129- New Choices Waiver (residential)
June 26th: Room 125- Day Support (non-residential)
July 3rd: Room 125- Employment (non-residential)
July 10th: Room 125- DSPD (residential)

We want to hear from you about mental health!

Boston University, Self Advocates Becoming Empowered and the Arc are currently involved in a research project on people with disabilities and mental health. This project, called the Intellectual/Developmental Disability and Mental Health Research Partnership (IDD-MH Research Partnership) is a group of young adult advocates with disabilities and mental health conditions. The group also includes researchers and professionals. They are asking for your help reaching out to young adults with IDD and mental health conditions, and their families.

They want to hear from young adults with IDD who:

    • Are 18-30 years old
    • Have a disability
    • Have a mental health diagnosis or receive treatment for mental health symptoms (for example: medication).

Young adults can tell us about their experiences by:

Taking their survey:
Sharing their story at a national listening session (held on the phone):
They also welcome parents to share stories about their young adult’s experiences at the national listening sessions.
Young adults will be entered to win a $25 gift card. They will give out 20 gift cards.

The survey answers and stories will help them understand what can make mental health treatment for young adults with disabilities better.


Next Chapter Bookclubs meet weekly for folks with developmental and intellectual disabilities to meet, make friends, read together, and share the love of adventure through story!
We currently have clubs meeting in:
Park City Library: Mondays at noon
Columbus Library (South Salt Lake): Wednesdays at 4pm
West Jordan Library: Thursdays at 4pmIf you would like more information about these clubs, or about ones forming in your local area, contact the UDDC at